Организации, оказывающие помощь при LQTS
Международные организации, оказывающие помощь при LQTS
- International Long QT Syndrome Registry
- P.O. Box 653
- University of Rochester Medical Center
- Rochester, NY 14642-8653
- Tel: (585)276-0016
- Fax: (585)273-5283
- American Heart Association
- National Center
- 7272 Greenville Avenue
- Dallas, TX 75231-4596
- Tel: (214)373-6300
- Fax: (214)373-0268
- Tel: (800)242-8721
- Email: inquire@heart.org
- Internet: http://www.americanheart.org
- Sudden Arrhythmia Death Syndromes Foundation
- 508 E South Temple #20
- Salt Lake City, UT 84102
- USA
- Tel: 8015310937
- Fax: 8015310945
- Tel: 8007867723
- Email: sads@sads.org
- Internet: http://www.sads.org
- NIH/National Heart, Lung and Blood Institute Information Center
- P.O. Box 30105
- Bethesda, MD 20824-0105
- Tel: (301)592-8573
- Fax: (301)251-1223
- Email: nhlbiinfo@rover.nhlbi.nih.gov
- European Long QT Syndrome Information Center
- Web Site on the Internet
- Ronnerweg 2
- Nidau, Intl 2560
- Switzerland
- Tel: 0041794741535
- Email: info@qtsyndrome.ch
- Internet: http://www.qtsyndrome.ch
- Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)519-3194
- Fax: (240)632-9164
- Tel: (888)205-2311
- TDD: (888)205-3223
- Email: gardinfo@nih.gov
- Internet: http://www.genome.gov/10000409 или http://rarediseases.info.nih.gov/html/resources/info_cntr.html
- HOPE (The Heart of Pediatric Electrophysiology)
- PO Box 519
- Park Ridge, NJ 07565
- Tel: (201)505-9383
- Fax: (201)505-0920
- Tel: (877)394-4673
- Email: info@heartbeatsofhope.org, info@timothysyndrome.org
- Internet: http://www.heartbeatsofhope.org; http://www.timothysyndrome.org